In his case it means he lives in his own apartment in an apartmentbuilding where people with special needs live.
The special needs range from physical disability, to almost normal but needing some minor guidance, to psychological issues.
One apartment is for the care workers.
People who can't cook can get their dinner there, it's the place for meetings, admin etc.
My son needs mainly support to keep his flat in order and clean, venting and at times dealing with social issues.
He went there when I nearly died from a heart problem.
The cardiologist thought it wise to arrange a place to live with support in case I might die.
Mr. J wouldn't be able to deal with him, his brothers wre too young at the time to provide enough support.
The cardiologist told me that my sudden death would mean he wouldn't be without proper support, that he needed time to settle and trust the people around him and it better had been dealt with when I was still there.
None expected me to recover.
My son has problems with his diagnosis. He doesn't consider himself to be autistic. So he wants to be diagnosed again.
He's a bad sleeper, going through a lot of medical examinations and even more misunderstandings and lack of knowledge of the doctors who are used to dealing with "normal" people and who don't know anything about autism. Doctor Google has provided a whole array of other diagnoses which are interesting
and even possible. Among them some genetic diseases which might even lead to the symptoms he experiences.
The psychologist who needs to make the new diagnosis can be helped with findings in the genetic area, so she supported him to ask Genetics to do some research.
Our son wanted to deal with Genetics all by himself.
I was OK with that. He can do that very well.
They started with asking him information...quite normal.
But we got a form to give our insurance number, GP's details and some more stuff, which was not necesssary at the moment.
So I contacted them and they agreed they would ask us to come in if needed.
I also didn't give them access to Mr. J's and my files.
They didn't ask anything about the other children, so we assumed that would be something for "later".
My daughter Jenny died the second day after her birth. She has her own files.
My daughter Winnie died during pregnancy and her files are enclosed in mine.
During the meeting with my son they spoke about his sister Jenny. He was surprised, kind of embarassed and also irritated as he knew they should have asked my permission.
I was furious. Not only about that, but also because he took one of the carers with him and they didn't ask permission to inform her about our family history. She was his driver!!
They agreed to put labtests in, he was told he had to wait 2 or 3 months and that was it.
Today he got a form to fill in.
It became clear they considered him to be incapacitated.
He is not at all! Not in the legal way.
It never stops...does it?
The psychologist who needs to make the new diagnosis can be helped with findings in the genetic area, so she supported him to ask Genetics to do some research.
Our son wanted to deal with Genetics all by himself.
I was OK with that. He can do that very well.
They started with asking him information...quite normal.
But we got a form to give our insurance number, GP's details and some more stuff, which was not necesssary at the moment.
So I contacted them and they agreed they would ask us to come in if needed.
I also didn't give them access to Mr. J's and my files.
They didn't ask anything about the other children, so we assumed that would be something for "later".
My daughter Jenny died the second day after her birth. She has her own files.
My daughter Winnie died during pregnancy and her files are enclosed in mine.
During the meeting with my son they spoke about his sister Jenny. He was surprised, kind of embarassed and also irritated as he knew they should have asked my permission.
I was furious. Not only about that, but also because he took one of the carers with him and they didn't ask permission to inform her about our family history. She was his driver!!
They agreed to put labtests in, he was told he had to wait 2 or 3 months and that was it.
Today he got a form to fill in.
It became clear they considered him to be incapacitated.
He is not at all! Not in the legal way.
It never stops...does it?
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